Arainia's parents expected a healthy baby. Her first moments of life seemed to confirm their hopes. On the outside she looked perfect, with downy strawberry-blond hair and blue eyes, ten fingers and ten toes. Perhaps it was the brief illusion of wellness — the anticipation of a new life unfurling before them — that made the subsequent diagnoses even more devastating. The problems found during Arainia's first three days of life had not been detected previously, despite... More >>>